3.9

Billirubin is at 3.9. not good enough to qualify for the clinical trial. Tuesday they will  redo the blood work again. If is it not down any more than they advise to start the standard treatment. if it is down to a 1.5 he can still participate in the trial.
I can not tell you how freaking frustrating this is. They have no advice on how to get this number down other than to drink more water. There has to BE something that we can do before Tuesday.
I think we are going to dig up the dietitians number to see if we can sit down with her to if there are better things that we can be eating.
I am so frustrated right now I could just scream. Standard treatment pisses me off. That maybe fine for someone without three kids and a wife but HELLO we have to be more aggressive here. But then I think maybe we are stressing over nothing maybe the standard will work even if it has a crappy track record in general. maybe Craig would be the exception.
It is so frustrating to not know what to do and to have some doctors be okay with going back to the "standard".
Anyway more to come...

if you have any scriptures on patience and guidedance and not stressing POST them. Somewhere in the spinning my go-to scriptures are lost in the what to do next.