Craig continues to decline. Even in the last 24-48 hours he has change drastically. He is so very thin and at times very confused. We are keeping up with pain meds around the clock. Hospice was here yesterday and said we were down to days. It could be seven or it could be just two or three. He is still eating a little each mealtime but is so extremely tired. His legs and arms have zero muscle tone and it makes it difficult to walk without assistance or even lift a water bottle to his mouth to take the pills.
We are talking about accessing his port to administer the pain meds so that we don't have to be up around the clock. At first he didn't seem pleased with this option but I think as time goes on the idea of not being woken up every two hours is appealing. I told him it would give him more freedom to be awake when he wants (which isn't often) and be asleep when he wants, he seemed to agree so we will probably make that change tomorrow.
We have short conversation through the day but most don't make a lot of sense. The only conversations that make sense are about basketball and he was worried about making sure some financially things were taken care of (which are). He tried to talk with the girls two days ago while he was outside for a couple minutes as well. How thin he is really startled Morgan. She just stopped in her tracks walking up the driveway. It was so sad. It is really hard for them to see their dad this way. The sunshine has been a HUGE blessing b/c they can get outside and play and wear themselves down and fall asleep quickly at night. I took Emily and Morgan to see Mary Poppins at the KY Center Tuesday night. It was good for them to have something to look forward to and they loved the show. Actually they just loved the first half of it since we went home at intermission - it was 3 hours and started at 7:30 on a school night! yikes.
If you are texting him, he reads them but cannot reply to them.
So we are "hanging in there" as they say. We feel the prayers that are being said and we know that Craig will be a whole person again soon. We find great comfort in that alone.